Hello
Part of the ME/Chronic Fatigue Syndrome that I have, means that my mobility/ability to travel far is extremely limited. On bad days, I can't even get out of bed! When I started my cognitive therapy, I had to have a goal, of what I wanted to achieve.
My goal is to be able to go to my parents place in Devon, and have a holiday there. I have not been able to do this for several years now, which is a shame, as my parents are the best, and they live right by the sea, and in the countryside.
To get to that goal, I have produced a list of mini goals.
Yesterday I completed one of the mini goals, and felt on top of the world as a result.
What was the goal?
To be able to go to the Church I used to attend, for a few minutes.
The Church is 5 minutes down the road, which may not sound far, for a normal person, but is like climbing Mount Everest to me!
When I can,I go to Anderson Baptist Church, now this is a 3 minute walk, but is to far to walk, so I have to have a lift, which takes all of a few seconds, but still draining.
It was great to get to Wycliffe (my old Church) and see some of my old friends again, though some of them did not recognise me, as my hair used to be short and white, now it is long and brown. I am hoping to go back again soon, and stay a little longer, yesterday was the tester, as it were, each time by building step up to the biggy, I gain more strength, and more confidence, it is such a great feeling, and well worth the effort. I just hope I don't get the backlash from doing so!
Roll on the next goal.
Miriam
Monday, May 12, 2008
Friday, May 9, 2008
US Researcher Announces Successful Antiviral Treatment For A Subset Of ME/CFS Patients
US and British Researchers highlight distinct subtypes of myalgic encephalomyelitis
Hello
Researchers have identified distinct subtypes of myalgic encephalomyelitis (ME/CFS – also referred to as chronic fatigue syndrome) and there is renewed hope ..
Miriam
Hello
Researchers have identified distinct subtypes of myalgic encephalomyelitis (ME/CFS – also referred to as chronic fatigue syndrome) and there is renewed hope ..
Miriam
Saturday, May 3, 2008
Local ME group, has breakthrough in campaign for better ME services
Hello
After years of campaigning for better services for people who have ME/Chronic Fatigue Syndrome, the local ME group, that I am part of, has had a breakthrough.
The Primary Care Trust, have commissioned, a questionnaire, asking people who have ME, what services they receive, that help, and the services they would like to receive. In my video below, I encourage, everyone who has ME, to campaign their PCT, for the same, with the help of your local ME group, or with friends help, or by yourself.
Miriam
After years of campaigning for better services for people who have ME/Chronic Fatigue Syndrome, the local ME group, that I am part of, has had a breakthrough.
The Primary Care Trust, have commissioned, a questionnaire, asking people who have ME, what services they receive, that help, and the services they would like to receive. In my video below, I encourage, everyone who has ME, to campaign their PCT, for the same, with the help of your local ME group, or with friends help, or by yourself.
Miriam
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