The week that was!

Hello

This week has been a bit busy, mainly because of media interviews with the local rags and local TV station, well it was only 2, but felt like a lot!

The reason for this…….. for years the ME/Chronic Fatigue Syndrome Support Group that I am part of, have been asking our local Primary Care Trust, for better facilities for people who have ME, and we are finally getting somewhere. They have commissioned a questionnaire, asking for people who have ME/Chronic Fatigue Syndrome, to tell them what services they currently have and need, the closing date for this was yesterday (although they are OK with receiving late entries), these will be analyzed and given to the Directors/Commissioners, to then see if there is any spare money is in the pot for our need/s, they will then look at what can be afforded and go from there.

This is a very important time for us, I am blessed that I have a fantastic doctor, but unfortunately not everyone is in the same position as I am.

We look forward to the results at the end of April. Our local TV station, will be contacting us for updates, and possible filming. Yes, this does take its' toll on me, but I enjoy doing it, and if it helps folks that's great.

I was also approached by Action for ME, to ask if I would be available for ME Awareness month next month, my answer of course! End of April and May, are always the busiest times in the year for me, because of birthday celebrations, and then ME Awareness the following month, and any interviews that follow as a result of it, but its all good stuff.

Miriam
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