Help for people on means tested benefits

 Hello

As disabled people, we have extra expenses to pay, and if you are on a low income, you probably want to save where you you can.

Most utility companies, offer special rates for people on means tested benefits its called a social tariff, plus with the water companies, you can have a water meter, if your landlord allows or you own the property, that can save you a fortune.

If you use a lot of water, you can also go on a special tariff, you just needs to apply for it.

I hope this helps.

Miriam

Extra funding for ME and Long covid

 

We have been delighted to see the positive reaction to our BBC Lifeline Appeal and would like to thank everyone who has watched, shared and donated to the appeal.   We have reached many new audiences with the video as seen from the number of new donors and social media followers we’ve had since it launched. The feedback we have received has been overwhelmingly positive, such as the below from a new follower: "I'm getting in touch because I was alerted to your BBC Lifeline Appeal via Instagram. I cannot tell you how supported, moved and seen I felt. Feeling so seen has helped me feel empowered, less alone and stronger inside.  I have shared the Appeal video to relatives and friends as well as from my Instagram account. Furthermore, the video helped me to feel more justified in asserting myself to speak out about the paucity of research and our treatment." Our video is still available to watch on the BBC website here, and we will continue to take donations towards the campaign until the end of May.

Donate

All money raised during the appeal will go towards our work to improve the lives of anyone affected by ME - meeting their needs today through delivering information, support and healthcare, and changing the future by investing in research.

Have you heard the news about major funding for Sequence ME & Long Covid?  This week we were delighted to announce that this new research project has received £4.75m from the UK Government’s Office for Life Sciences (OLS), signalling a transformative step toward uncovering the biological roots of ME/CFS and Long Covid. This funding was secured by Action for ME and our research partners, with the money going directly to University of Edinburgh to start sequencing DNA samples. Read more here.  Creating these partnerships and securing this level of funding is only possible thanks to donations from people through appeals like our BBC Lifeline – if you are able to donate to or share the appeal video, you are helping us to create these major research milestones and moments of real hope for all those affected by ME.

Warmest wishes,  The Action for ME Team

You can now watch and share our BBC Lifeline Appeal!

 

You can now watch and share our BBC Lifeline Appeal! Our appeal video was shown live on BBC One yesterday and is now available to watch and share on the BBC's website. We're delighted to have Montell Douglas as our BBC Lifeline Presenter! Montell features in our 9-minute video, alongside our CEO, Sonya Chowdhury, and the real stories of Andrea, Alice and Isla, and Mark who share their experiences of living with ME. We'd like to say a huge thank you to Montell and our fantastic contributors for supporting our appeal and the wider ME community.

Watch and Share

“ME is a condition that affects so many people, yet is still widely misunderstood and often overlooked. Through this appeal, I hope we can shine a light on the reality of living with ME, including those who are severely affected." - Montell Douglas

3 things that will improve your health

 

Hello

This is from Just one thing program, 3 things that can improve your health.

Drinking 4 cups of tea a day. The properties in tea are full of antioxidants, and will boost your health and make you more relaxed.

Having 3 beetroot a day, will help with concentration.

Having a piece of dark chocolate a day, will boost your brain power. If you are not keen on the taste, you can start with 55% and build up.

I hope this helps.

Miriam

Action for ME on the BBC

 

Action for ME is coming to the BBC!  We are delighted to share with you that we have been selected for a BBC Lifeline Appeal – a unique opportunity to increase understanding of ME across national TV. Since February we have been working with the BBC to develop a 9 minute video featuring the real-life stories of people with ME. These stories will be shown on BBC One on Sunday 26th April at 2:50pm. Keep an eye on our social media or BBC Lifeline webpage (links below) for further updates.  The video will be available to watch on the BBC website until Saturday 16 May and will feature the stories of three people living with ME in the UK. Through this TV appeal, we hope to reach an audience unfamiliar with the realities of living with ME, combat stigma and raise vital funds towards our work. All money raised during the appeal will go towards our work to improve the lives of anyone affected by ME – meeting their needs today through delivering information, support and healthcare, and changing the future by investing in research. Donations can be made from Monday 20th April. Watch & donate to help people like... Isla, who developed ME after Covid. It has been hard for Isla and her family, but after accessing our Support Services, Isla's mum said,  "It has been wonderful to be part of a community of people who truly understand what you are going through. Every person that I have interacted with at Action for ME has been very kind and empathetic.” Andrea, who has been living with severe ME for 33 years and has accessed our Information & Support Services. “Having had contact with Action for ME I felt supported for the first time in 30-odd years. I was listened to and believed.” Mark, who had mild ME for 30 years, then in 2016 it became moderate, then severe. Mark participated in our recent DecodeME genetic research project as, in his words, “This was a golden opportunity to help prove to the world that ME is NOT a psychological condition but a physical illness”. Please save the date, tune in to BBC One on Sunday 26th April if you can, and thank you so much for your support. Warmest wishes,  Sonya Chowdhury Chief Executive, Action for ME P.S. Please tell your friends and family too – the more people we can reach with this video, the more we can shine a light on the reality of ME.

Visit the BBC Lifeline Page

How to save your life, in one easy stroke

Hello

Do you have a smoke detector, do you test it once a month, by doing so, you will save your life, especially if you have a fire in your home.

Miriam 

This is a matter of life and death.

 Hello

From Morning Live, market places like Ebay, Amazon and Facebook are not regulated, so they can sell anything. One thing, you don't want to risk is a fire in your own home, just because something is cheap online.

If an electrical product does not have the letters EC on them, they are fake, and could burst into flames at any time. If you want electrical goods, go to Currys, Heelas, to name a couple.

Don't risk your life, over cheap good, that may be fake.

Miriam