Monday, March 16, 2026

Free tradesmen for you?

 Hello


I got this from Morning Live.


If you want a tradesman free or expenses paid only, there is an organisation called the Mens Shed, it is a group of retired men, who are happy to do free work or expenses paid, in the UK.

Many times, when people retire they don't know what to do with their life, with this, they can continue to work very part time, giving them a purpose, and saving your money at the same time.


Miriam



Wednesday, March 11, 2026

How to cut your energy bills

 Hello


I got this from watching Morning Live.


Use the eco settings on your devices, this saves energy each time you use it.

Turn your heating down a degree or so, and add more jumpers!

Don't overfill your kettle, as it uses a lot of energy to boil.

Don't over fill your fridge, and it takes up more energy because of lack of air space to circulate air.

Don't put things on standby.


I hope this helps.


Miriam

Thursday, March 5, 2026

Sequence ME and Long Covid beginning.

 

As a valued supporter of our work, we are delighted to share the exciting news that we have secured funding for phase 1 of Sequence ME & Long Covid - the world’s largest long-read whole-genome study of any disease.


The study will analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid. The initiative is designed to explore the causes of Myalgic Encephalomyelitis (ME) and Long Covid using large-scale, long-read whole-genome sequencing.


Building directly on the success of the DecodeME study, this project aims to unlock deeper genetic insights that could accelerate the development of diagnostics and future life-changing treatments. 


Find out more about Sequence ME & Long Covid


The Schmidt Initiative for Long Covid and CODA (Complex Disorders Alliance) have provided $200,000 and $50,000 respectively towards the cost of the project’s first phase. 


In this first phase we will:

  • establish the project’s Management Group, Scientific Advisory Board, and build on the existing involvement of people with lived experience who have driven this study from the start
  • develop the research criteria for Long Covid
  • collect expressions of interest from 15,000 people with Long Covid

We are delighted to be able to begin this ground-breaking research, however the total cost of the initiative is £20million, with phase one lasting two years and costing £388,138. The funding provided by project partners CODA and The Schmidt Initiative for Long Covid will enable us to recruit a full-time Partnerships and Business Development Manager to help drive this work, including seeking further funding and partnerships for the study.


Once further funding is secured, we will immediately move into sample collection and analysis – aiming to sequence 9,000 Long Covid samples, as well as the 9,000 samples already collected through DecodeME. 


We are now in a position to take donations towards the project from those who are able to. If you would like to support the project, you can make a donation here.

We will share future updates on the study’s progress with you as soon as possible. Our ability to develop research partnerships such as these is only possible due to the support of people like you.


Thank you for helping us create real change for people with ME and Long Covid, now and in the future.


Warmest wishes,

The Action for ME Team

P.S. We still have some seats available at our Breakthrough ME fundraising dinner in London on Thursday 15th October 2026. For more information or to book your seat, please contact breakthrough@actionforme.org.uk

Donate to Sequence ME & Long Covid

Miriam
miriampotter40@gmail.com

Saturday, February 28, 2026

Frozen are better than fresh!

 Hello


If you are like me and love fruit and vegetables, but a cannot afford, them fresh, then buying frozen is just if not better for you because they are frozen at source. 


Miriam

Sunday, February 8, 2026

How to save money

 Hello


How often do you look through your bank statements and see a subscription, that you don't need any more?


Now is the time, to do just that, go through your bank statements, and highlight any subscriptions, that you have that you no longer need or use, and get rid of them.


With broad band and any other services that are similar, could you get a cheaper deal, why not give it a try?


If you are not well enough to do it, why not ask a trusting person to do it for you.


Miriam

Sunday, February 1, 2026

How to improve your mental health

 Hello

The following are ways to  improve your mental health.


Be in nature, I don' t know about you, but nature does me so much good. Having a bird house in the garden, which is regularly topped up, and watch wildlife come and go, is such a tonic, it gives me so much pleasure, and does not take much work at all.


A more painful way is to have an ice bath, but I suggest you run it past the doctor before doing it, and the same with cold showers.


I hope this helps.


Miriam


Wednesday, January 21, 2026

Never eat ultra processed food

 Hello

Everyone knows, the damage ultra processed food does to your body, but people still eat it, because it cheap, why not ditch them, and go to Aldi or Lidl and get fresh food there, its much cheaper.

I am aware that many people who have ME, cannot go shopping, maybe your carer a friend or a neighbour can do some shopping for you.


As the saying goes, never eat anything, that has a name on it, where you don't know what it is.


Miriam