Hello
This week has been a tad busy, its been snowing, and I've been loving it, I have been going out, and standing out in it, its been wonderful.
I have also had one media interview on ME for some national magazines, and sent one article to the local rag, that was published, regarding the judicial review, that is being held next week over the Nice guidelines for people who have ME, it will be interesting to see how it goes.
However, I have also had a light bulb, experience, I was watching South Today, and they said, about a guy, that had a social networking site for people who have cancer, then I thought, is there any such thing for people who have ME? I am not really into them, I think they are a bit dodgy, as you never know, if the person/people you are talking to are geniune or a fruad, so what I did, was contact Afme, and The M E Assocation, to see if one exists if non does, I will ask for a piece to be put in their mags, to see if there is a need, and possibly do a video for You Tube, asking the same thing, if there is a need, I might try and reach it.
One big thing about ME, is the issue of isolation, as many sufferers can't get out, I know, I am one! this would help people connect with each other. I would have to make sure that it involved minimal work on my part, however at the moment it is very much at the research stage.
Do you know if there is a social networking site for people who have ME, if there is, please do let me know its url, if there isn't, would you like to see one come together, thanks. I would not so much use it as a money making venture, but as a way for people who have ME to support each other.
Miriam
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