This post is taken from the ME Essential magazine, its a magazine for people who have ME, as is by The ME Association, of which I have permission, to copy.
The ME Association has been
actively involved with the ME/CFS
Biomedical Partnership (MCBP)
in the preparation of a major
research grant application to
investigate the genetics of ME/CFS.
Please vote in the MEA website
survey! You will find it located on
the homepage of our website
www.meassociation.org.uk. It
appears about halfway down the
page, just below the ME Biobank
promotion.
The ME/CFS Biomedical
Partnership: Genetics and
Biomarkers is a partnership of
researchers, people with ME/CFS,
carers and the public.
The partnership will shortly make a
grant application to the Medical
Research Council and the National
Institute for Health Research for a
very large genetic study into ME/
CFS known as a genome-wide
association study (GWAS).
The project will be led by Professor
Chris Ponting at the University of
Edinburgh in partnership with the
UK ME/CFS Biobank at the London
Prof. Chris Ponting,
MRC Institute
of Genetics
& Molecular
Medicine
School of Hygiene & Tropical
Medicine – where all the basic
running costs are provided by the
ME Association Ramsay Research
Fund.
The study will analyse DNA (=
genetic material) from the saliva
of 20,000 ME/CFS patients to see
whether ME/CFS is partly genetic
and, if so, what might be causing
the disease.
The study should help us to
increase our understanding of
the disease and why it sometimes
occurs in more than one member
of a family.
This research could also help
in the discovery of diagnostic
biomarkers and drug treatments
that would be worth investigating.
At this stage, you can help in two
ways, whether you’re a patient or
a supporter.
Everyone can sign up to say that
they’d like to hear if the study gets
under way so that they can help
spread the word, and patients can
indicate that they might like to
take part in the study.
The ME/CFS Biomedical
Partnership would like your
thoughts on how best to recruit
patients. This will be a huge
challenge and we need your ideas.
You can find out more about
the study on the FAQs page of
the MCBP website here: https://
mebiomed.org.uk/faqs
This is an historic opportunity for
ME/CFS patients, and the ME
Association is looking forward to
working with both patients and the
research group to help make it a
reality.
There has been a fantastic early
response to promotions with over
6,000 patients signing up to the
initiative already!
We will keep you informed of
developments as we hear them
but if you can vote in our survey it
will help us to gauge support for
the proposed study.
More information
and regular progress
reports can be found
on the MCBP website:
mebiomed.org.uk
Miriam
£50
for joining, and £50 if you recommend a friend.
No comments:
Post a Comment