Hello
I have permission from the ME Association to post this on here.
As a member of the committee
that is preparing the new NICE
guideline on ME/CFS, I am
allowed to provide information
on subjects being discussed
but not the content of these
discussions.
We are now entering the third
and final year of this work and
in view of the large amount of
evidence that we have been
considering the intention to
publish the new guideline has
been put back from October to
December 2020.
The committee is now holding
two consecutive full-day
meetings at regular intervals.
The most recent meetings have
been considering summaries
and critical analysis of all the
clinical trials that have been
published into drug and nondrug
management of ME/CFS.
The former includes drugs that
have been used in an attempt
to treat the underlying disease
process and drugs used to treat
symptoms such as pain and
sleep disturbance.
The latter includes approaches
such as CBT, GET and pacing -
as well as dietary interventions,
alternative therapies, vitamins
and minerals. We are also
starting to discuss the large
amount of patient evidence
that has been received and
setting up patient groups
covering children and severe
ME/CFS.
Dr Charles Shepherd
Hon Medical Adviser, MEA
Miriam
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