DecodeME updates and blog posts

 

We wanted to let you know what’s been happening in the DecodeME study over the past month and share some blog posts on our website that may be of interest to you. New DecodeME questionnaire The DecodeME team have been creating the new DecodeME questionnaire. We’ve listened to the feedback from our test participants and have made changes to make sure it’s designed for people with all severities of ME/CFS. You can find out more about the work that has gone into the new DecodeME questionnaire and the role that ‘Patient and Public Involvement' (PPI) plays in the project in our recent blog post. This post was co-written by two of DecodeME’s PPI team members, Claire and Sian.   ME Awareness Week Read our blog post on what DecodeME means to people with ME and we hope you’ll be able to join in on social media on May 12th by sharing ‘#DecodeME matters to me because....’. More details about this Call to Action are in the blog post.   Genetics and new treatments You can also find out about how DecodeME could lead to finding new treatments and why studying the genetics of ME/CFS is so important here. Or read the blog post written by DecodeME’s Chief Investigator Chris Ponting where he compares his experiences working on both DecodeME and the Human Genome Project. Study timescales We want you to know that although we are still waiting to fully open recruitment for the study, we are still on track to completing the study within its original timeframe. We will publish some preliminary results in 2023 and the final results at the end of 2024. The next stage of the project is to continue our phase 1 launch, which will be testing our process with online test participants using the new DecodeME questionnaire. We hope to soon update you when this starts.   Thank you for your continued support and interest in DecodeME.

Best wishes, The DecodeME team