Let me out!

Hello

I have to say, this week, has been tough? Why?

Well last week, my brother, came over from Hong Kong, so we all met as a family, I arranged with them, that I come at the end, as this was/is a big thing for me to do, I was actually getting out of my home for a short while, and living a near normal life for a few minutes! Something I love to do, but so often dare to do, because of the consequences/illness. I had rested all week, in preparation for this great event.

My family and I had a really good time, it was great to see my brother again, and sister Rachel came up and gave me a great big hug, which was fantastic, I love her dearly, as I do all of them. I was there longer than I anticipated, but it was great, just to sit in the sun, having a drink and being normal! for a short time, although my body was saying very loudly to me, what are playing at, no-one else knew, the constant struggle, I have each day, in what is called, Myalgia Encephalitus. I had an hours release from me prison before returning home.

Don't get me wrong, I love my home, my neighbours are great, and I have good friends, but it is nice to just get out for a short time - although for me it did feel like a long time, albeit it 30 mins, normally, on a good ME day, I go out for 10 mins max, and even then, I suffer the next day!

I hope this posting is not to negative, I try to stay positive as much as possibly, but you also have to live in reality.

Anyway, the first days, afterwards, although very tired, I did not feel to bad, but then I got the usual delayed reaction, and bang, the bars of my prison, come back with a vengeance, again, I say let me out, I can't stand this prison, and my crime for this existence - getting the flu! and then never recovering.

I hope and pray, that one day, research will find the reason behind this dreadful illness, and give sufferers a way to recover, and get back to a relatively normal life, what ever that is.

However all is not lost, my cocoa powder should arrive today, and I will start to take it in the hope, that at least it will clear up my brain fog, if nothing else,a step in the right direction.

(My cocoa powder has now arrived, so my experiment starts now!)

I hope this post has not depressed you, but gives you a window into the world of Myalgia Encepahalitus.

Miriam