Monday, May 31, 2021

People with ME/CFS need big change

 

For years, people with ME/CFS have faced stigma, neglect and disadvantage. Research funding has been pitiful.
 
But collaborative biomedical research like DecodeME, looking for causes of ME/CFS, can fuel the dramatic transformation so urgently needed. 

Our new blog post explains how research and collaboration can help get better diagnosis, targeted treatments and maybe, one day, a cure.
 
 
Doing the largest ever DNA study of ME/CFS is a huge challenge. But together we can make it possible.

By registering for the study and/or helping us recruit 20,000 participants with ME/CFS, we're one step closer to making this groundbreaking study happen. Read on for ideas to help spread the word.
 
DecodeME video - drawings of people doing science
Watch and share: be first in line
for DecodeME
 
Our 30-second animated video gives you key information about DecodeME. Watch it for a quick refresher on our DNA study, and share on social media to help reach more people with ME/CFS to take part.
 
Watch the video
Help recruit more people to the study
 
Hands typing at a keyboard, with facebook likes and heart symbols appearing
 
Can you become a social media ambassador?
 
With your help, we can reach even more people with ME/CFS online. Being an ambassador can be as simple as sharing our posts, or we'll support you to create your own.
 
Sign up
Map of the United Kingdom
 
Are you involved in a
ME/CFS support group?
 
Could your local or regional support group help us find the 20,000 participants we need? We'll provide webinars, blogs and online talks to help you recruit others in your group to the study.
 
Sign up
 
 
Thank you for your continued support. The team is busy behind the scenes getting everything ready for the DecodeME launch in autumn and can't wait to get started.

All the best,  
The DecodeME Team.  
 
 
© 2021 DecodeMe

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