Your webinar recording & transcript

 

Your recording and transcript of January's DecodeME webinar are ready! It's an exciting time, as we invite our first participants to take part. Catch up with our webinar. There's a video, audio and written transcript for you to enjoy in your own time, if you were unable to join us live.

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Patients Life of Pippa’s Pippa Stacey and Blue Sunday: the Tea Party For ME creator Anna Redshaw appeared in video messages, explaining their roles talking to the online ME/CFS community about the study and encouraging people to register.   Claire Tripp, a carer and part of the study’s Patient and Public Involvement steering group, explained the important role ME/CFS patients and carers play in making the study as inclusive as possible. The team also answer your questions.

Get the webinar recording

Don't worry if you don't have the time or energy to watch/read. You do not need to watch the webinar to take part in the study.   We're opening up study participation slowly to ensure everyone has the support they need and everything's working well. We'll email you when it's your time to take part (if you're in the UK, over 16 and have a ME/CFS diagnosis). You'll be first in line when online recruitment opens. If you (or the person you support) may struggle with filling in a questionnaire online and may need a paper version instead when it's your turn to take part, please reply to this email and we'll make a note of this.