Do you want your MP to be more involved in ME?

Hello

Would you like your MP, to be more involved, in helping the ME cause?

I know I do, there is a very simply way, you can do this.

In the government, they have different committees for different things, and ME, has one too, its called an APPG, and you can invite, your MP to be part of it.

Don't worry, if you don't know, what to say, that has been sorted for you!

Just click here, to find out more, and please do let me know, how you get on.

Miriam

Low dose naltrexone, have you tried it, what do you think of it?

Hello

Are you like many ME sufferers, looking for an answer to their illness, a way to get away, from this living death experience, one drug that is being debated at the moment is naltrexone, you can find out more about it by clicking here.

The ME Association, are looking to find people who have tried it, how they found it, what side affects did you have, and what general feedback can you give please, you can give feedback, by clicking on the link below, thanks, feel free to edit/add your feedback, a space has been made available for this purpose.

Miriam

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I run the London Marathon, despite having ME/chronic fatigue syndrome.

Hello

As you know, I am part of an ME group, last weekend, one of the members of the group, rang in the London Marathon, she has all but recovered from the illness, and now works to raise money for Action4me, as they helped her, while she was sick, you can read her story here.

Last week, I told you about the lady, who helped her daughter die, it must have been a very painful thing for her to do, the latest news is here!

Finally, do you wear glasses or contact lenses, if you do this bit is for you!

Now if you have just been diagnosed with ME, then you will be covered under the new benefit rules, however, for those that are still with the old system, when you go to the opticians, and want to get your glasses/contact lenses free, you have to tick a box, to qualify for financial relief, you need to be on job seekers allowance, or on a low pay and receive tax credits, there are other categories, but none for long term sick, unless you are under the new benefits system, so what do you do? You ask for a HC1 form, this is like having an ‘other’ box, you then fill in the details, and send it off, for them to give you a refund, I am being sent one, and when I know more, I will tell you....

Miriam