Hello
There is to be a review of the NICE guidleline, on how people who have ME/CFS are to be treated, please see more details here.
Miriam
Showing posts with label ME/CFS. Show all posts
Showing posts with label ME/CFS. Show all posts
Sunday, October 24, 2010
Saturday, January 30, 2010
Kay Gilderdale, was it the right decision?
Hello
This week, has been a big ME week, with the Kay Gilderale case, below are some remarks on what has been going on.
Afme
The ME Assocation.
Daily Telegraph
Miriam
This week, has been a big ME week, with the Kay Gilderale case, below are some remarks on what has been going on.
Afme
The ME Assocation.
Daily Telegraph
Miriam
Saturday, May 2, 2009
I run the London Marathon, despite having ME/chronic fatigue syndrome.
Hello
As you know, I am part of an ME group, last weekend, one of the members of the group, rang in the London Marathon, she has all but recovered from the illness, and now works to raise money for Action4me, as they helped her, while she was sick, you can read her story here.
Last week, I told you about the lady, who helped her daughter die, it must have been a very painful thing for her to do, the latest news is here!
Finally, do you wear glasses or contact lenses, if you do this bit is for you!
Now if you have just been diagnosed with ME, then you will be covered under the new benefit rules, however, for those that are still with the old system, when you go to the opticians, and want to get your glasses/contact lenses free, you have to tick a box, to qualify for financial relief, you need to be on job seekers allowance, or on a low pay and receive tax credits, there are other categories, but none for long term sick, unless you are under the new benefits system, so what do you do? You ask for a HC1 form, this is like having an ‘other’ box, you then fill in the details, and send it off, for them to give you a refund, I am being sent one, and when I know more, I will tell you....
Miriam
As you know, I am part of an ME group, last weekend, one of the members of the group, rang in the London Marathon, she has all but recovered from the illness, and now works to raise money for Action4me, as they helped her, while she was sick, you can read her story here.
Last week, I told you about the lady, who helped her daughter die, it must have been a very painful thing for her to do, the latest news is here!
Finally, do you wear glasses or contact lenses, if you do this bit is for you!
Now if you have just been diagnosed with ME, then you will be covered under the new benefit rules, however, for those that are still with the old system, when you go to the opticians, and want to get your glasses/contact lenses free, you have to tick a box, to qualify for financial relief, you need to be on job seekers allowance, or on a low pay and receive tax credits, there are other categories, but none for long term sick, unless you are under the new benefits system, so what do you do? You ask for a HC1 form, this is like having an ‘other’ box, you then fill in the details, and send it off, for them to give you a refund, I am being sent one, and when I know more, I will tell you....
Miriam
Saturday, March 28, 2009
Judicial Review, the pain of ME! and the petition.
Hello
I must admit, that the last few weeks, have been tough, I have had alot of pain, and some days, have not been able to walk, now it is down to a twinge, I can cope with that!
I was saddened to see that we failed at the judicial review, with the government winning, we wait and see what happens, for up to date information on this, please check the Afme and MEA websites.
I have also wanted to do a video for You Tube members, re signing the petition, to the government, for more resources to be put in for our cause, when I am a bit better, I will aim to do that. I sent the information to my local rag, the Reading Chronicle, so we see what happens there.
I think that is all for now.
Miriam
I must admit, that the last few weeks, have been tough, I have had alot of pain, and some days, have not been able to walk, now it is down to a twinge, I can cope with that!
I was saddened to see that we failed at the judicial review, with the government winning, we wait and see what happens, for up to date information on this, please check the Afme and MEA websites.
I have also wanted to do a video for You Tube members, re signing the petition, to the government, for more resources to be put in for our cause, when I am a bit better, I will aim to do that. I sent the information to my local rag, the Reading Chronicle, so we see what happens there.
I think that is all for now.
Miriam
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