Hello
Afme, are looking for Christmas angels for people who have M E.
To find out more, please go here.
Miriam
Showing posts with label Action for ME. Show all posts
Showing posts with label Action for ME. Show all posts
Monday, October 17, 2011
Sunday, September 11, 2011
Concerned about ESA?
Hello
Changes are daunting at the best of times, but when people don't seem to know what they are doing, it is even harder?
What view point do you feel out the ESA form from?
Do I believe the rumours that are going around about it?
What is the best way to go forward, in order to receive the benefit?
The list goes on....
This is what happens.
They send you a letter stating, that it is your turn to go onto the benefit, in the letter it states, that they will call you, this is simply to explain how it will all work, and answer any questions you may have to ask, the people who ring, are really nice.
If you are housebound, you can have any assessment you need done in your own home, you just have to have a letter from your doctor, that you include with your form, stating that you need an assessment done at home, rather than going out, and the reasons why.
The secret is to put as much information in the form as possible, to include testimonies from friends. Look at it as a job interview, the assessors want to know, how your illness affects you, as you are applying for financial help, via benefits, instead of applying for a job, you are effectively apply for benefits, they want to know, are you well enough, physically, mentally and cognatively to do an 8 hour day, on a regular basis, if you are not, you need to prove that in your form, if you have a benefits help type agency near where you live, I would recommend you contact them, as they help with getting people benefits all the time, this will give you the best chance possible, once you have filled it in, send it in, with the testimonies, by the date given on the covering letter, they give you a couple of months to send it in, so you can do it bit by bit.
They will then contact your doctor, to find out more about you, and depending on that and the information that you put in the form, will determine, what happens next, if you put enough in, they will input the information into a computer, and that decides, what you will receive. They will then ring you with the result, if you need an assessment, they will ring you, to arrange for the assessment and medical.
How has it worked for you so far, feel free to share, via the comments section.
You can also share your experiences and learn from others at the Afme forum.
I hope this information helps.
Miriam
Changes are daunting at the best of times, but when people don't seem to know what they are doing, it is even harder?
What view point do you feel out the ESA form from?
Do I believe the rumours that are going around about it?
What is the best way to go forward, in order to receive the benefit?
The list goes on....
This is what happens.
They send you a letter stating, that it is your turn to go onto the benefit, in the letter it states, that they will call you, this is simply to explain how it will all work, and answer any questions you may have to ask, the people who ring, are really nice.
If you are housebound, you can have any assessment you need done in your own home, you just have to have a letter from your doctor, that you include with your form, stating that you need an assessment done at home, rather than going out, and the reasons why.
The secret is to put as much information in the form as possible, to include testimonies from friends. Look at it as a job interview, the assessors want to know, how your illness affects you, as you are applying for financial help, via benefits, instead of applying for a job, you are effectively apply for benefits, they want to know, are you well enough, physically, mentally and cognatively to do an 8 hour day, on a regular basis, if you are not, you need to prove that in your form, if you have a benefits help type agency near where you live, I would recommend you contact them, as they help with getting people benefits all the time, this will give you the best chance possible, once you have filled it in, send it in, with the testimonies, by the date given on the covering letter, they give you a couple of months to send it in, so you can do it bit by bit.
They will then contact your doctor, to find out more about you, and depending on that and the information that you put in the form, will determine, what happens next, if you put enough in, they will input the information into a computer, and that decides, what you will receive. They will then ring you with the result, if you need an assessment, they will ring you, to arrange for the assessment and medical.
How has it worked for you so far, feel free to share, via the comments section.
You can also share your experiences and learn from others at the Afme forum.
I hope this information helps.
Miriam
Wednesday, August 10, 2011
Do you feel isolated and alone?
Hello
One of the problems with ME, is that you can feel isolated and alone, with the illness.
Action4me, have just launched a forum, so that you never need to feel this way again.
It is there for you, whatever your need is.
Miriam
One of the problems with ME, is that you can feel isolated and alone, with the illness.
Action4me, have just launched a forum, so that you never need to feel this way again.
It is there for you, whatever your need is.
Miriam
Sunday, July 10, 2011
Action for ME has had a facelist
Hello
As many of you will know, Action for ME, is an excellent, orgnisation, that support people who have ME, however it is now 'new improved', to check it out, please click here.
I was watching the Andrew Marr show this morning, and they were talking about energy prices, he was interviewing an MP, I can't remember which one, and Andrew asked how vunerable people are meant to cope with the energy price hikes when they are struggling already financially, the MP said, that if you contact your energy provider, and explain your situation, the government has put a pot of millions by, that they can use, to help to pay for their energy bills.
I hope this helps.
Miriam
As many of you will know, Action for ME, is an excellent, orgnisation, that support people who have ME, however it is now 'new improved', to check it out, please click here.
I was watching the Andrew Marr show this morning, and they were talking about energy prices, he was interviewing an MP, I can't remember which one, and Andrew asked how vunerable people are meant to cope with the energy price hikes when they are struggling already financially, the MP said, that if you contact your energy provider, and explain your situation, the government has put a pot of millions by, that they can use, to help to pay for their energy bills.
I hope this helps.
Miriam
Sunday, January 23, 2011
Mike Crawford recovers from ME
Hello
We have all heard of Michael Crawford, but did you know, he has recovered from ME, and is now back in theatre?
Please click here to find out more.
Miriam
We have all heard of Michael Crawford, but did you know, he has recovered from ME, and is now back in theatre?
Please click here to find out more.
Miriam
Saturday, December 18, 2010
Biobank for M.E. Appeal
Hello
Want to help set up UK’s first biobank for M.E. research?
Lets move forward with ME in 2011.
Have a great Christmas, enjoy the snow, and I hope you have a better year next year.
Want to help set up UK’s first biobank for M.E. research?
Lets move forward with ME in 2011.
Have a great Christmas, enjoy the snow, and I hope you have a better year next year.
Saturday, September 18, 2010
ME and benefits
Hello
I can't believe, it is nearly two months since I have been in and did a post here, most of that time, has been spent in bed.
I have some encouraging news for you.
I had a letter from the Department of Work and Pensions, they said, if I (people with long terms conditions) have paid their stamp, as granny would have said, then the new incapacity benefit, that you will receive on the new benefits system, will not been means tested, now I don't know, how long you need to have paid your stamp, to qualify.
The new system, starts in February of next year, for existing people who are on incapacity benefit, not all the facts are together and could change! not helpful I know.
At the moment, they are still going ahead with people having to have a medical if they go for disability living allowance, they are hoping, this will save them £1billion, it is interesting, that they are more interested in the governments money, than our needs at times!
We wait and see what happens.
Two sites, that regularly update, with issues like these are
Action for ME and the
ME Association, be sure to check them regularly.
I can't believe, it is nearly two months since I have been in and did a post here, most of that time, has been spent in bed.
I have some encouraging news for you.
I had a letter from the Department of Work and Pensions, they said, if I (people with long terms conditions) have paid their stamp, as granny would have said, then the new incapacity benefit, that you will receive on the new benefits system, will not been means tested, now I don't know, how long you need to have paid your stamp, to qualify.
The new system, starts in February of next year, for existing people who are on incapacity benefit, not all the facts are together and could change! not helpful I know.
At the moment, they are still going ahead with people having to have a medical if they go for disability living allowance, they are hoping, this will save them £1billion, it is interesting, that they are more interested in the governments money, than our needs at times!
We wait and see what happens.
Two sites, that regularly update, with issues like these are
Action for ME and the
ME Association, be sure to check them regularly.
Tuesday, July 6, 2010
Do you want your MP to be more involved in ME?
Hello
Would you like your MP, to be more involved, in helping the ME cause?
I know I do, there is a very simply way, you can do this.
In the government, they have different committees for different things, and ME, has one too, its called an APPG, and you can invite, your MP to be part of it.
Don't worry, if you don't know, what to say, that has been sorted for you!
Just click here, to find out more, and please do let me know, how you get on.
Miriam
Would you like your MP, to be more involved, in helping the ME cause?
I know I do, there is a very simply way, you can do this.
In the government, they have different committees for different things, and ME, has one too, its called an APPG, and you can invite, your MP to be part of it.
Don't worry, if you don't know, what to say, that has been sorted for you!
Just click here, to find out more, and please do let me know, how you get on.
Miriam
Sunday, April 18, 2010
Never give up
Hello
I want to encourage you all today, to never give up. OK, we live in a state of living death of most of the time, but there is a light at the end of the tunnel.
Have dreams and goals, they keep you sane, live one day at a time, even one step at a time, and when you have achieved something, write it down, in your diary, or on a calendar, then give yourself a pat on the back.
I had two interesting articles come in, I hope you enjoy them.
A play, that put together, by someone who has ME, and inspiring story for all.
The other not so positive, but shows the reality of the illness.
I hope you have a living life week, this week, rather than a living death one.
Until next time.
Miriam
I want to encourage you all today, to never give up. OK, we live in a state of living death of most of the time, but there is a light at the end of the tunnel.
Have dreams and goals, they keep you sane, live one day at a time, even one step at a time, and when you have achieved something, write it down, in your diary, or on a calendar, then give yourself a pat on the back.
I had two interesting articles come in, I hope you enjoy them.
A play, that put together, by someone who has ME, and inspiring story for all.
The other not so positive, but shows the reality of the illness.
I hope you have a living life week, this week, rather than a living death one.
Until next time.
Miriam
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EMF Email FormsSaturday, February 20, 2010
Have you heard yet?
Hello
Last weekend, I encouraged folks to contact their MP's, with regards to getting the government to take our needs seriously, the Afme website, has a ME manifesto, together with contact details of your MP, and template letter you can send.
Please click here, for the details of the post.
Today, I had a letter from my MP, Rob Wilson, as I have said before, he is an excellent MP, very responsive, and does what he is paid to do.
He has taken the manifesto on board, and will be meeting up with the minister responsible for health within the next two weeks, to discuss this important issue, I will let you know, how it goes.
I am not saying this to blow my own trumpet, but to encourage folks to do the same. You may think, that just one person doing it, won't make a difference, but if lots of 1 people do it, it will make a difference, we vote them in, so make the most of them.
Miriam
Last weekend, I encouraged folks to contact their MP's, with regards to getting the government to take our needs seriously, the Afme website, has a ME manifesto, together with contact details of your MP, and template letter you can send.
Please click here, for the details of the post.
Today, I had a letter from my MP, Rob Wilson, as I have said before, he is an excellent MP, very responsive, and does what he is paid to do.
He has taken the manifesto on board, and will be meeting up with the minister responsible for health within the next two weeks, to discuss this important issue, I will let you know, how it goes.
I am not saying this to blow my own trumpet, but to encourage folks to do the same. You may think, that just one person doing it, won't make a difference, but if lots of 1 people do it, it will make a difference, we vote them in, so make the most of them.
Miriam
Saturday, January 30, 2010
Kay Gilderdale, was it the right decision?
Hello
This week, has been a big ME week, with the Kay Gilderale case, below are some remarks on what has been going on.
Afme
The ME Assocation.
Daily Telegraph
Miriam
This week, has been a big ME week, with the Kay Gilderale case, below are some remarks on what has been going on.
Afme
The ME Assocation.
Daily Telegraph
Miriam
Saturday, October 24, 2009
Could I get ME/CFS as a result of getting Swine Flu?
Hello
This is a good question, and 'The ME Assocation' has taken this on board, and answered the question, please check out their answer here, thanks.
If you are short of energy, please go to the answer, which is point 10, if you have more energy, you can read the whole article!
Miriam
This is a good question, and 'The ME Assocation' has taken this on board, and answered the question, please check out their answer here, thanks.
If you are short of energy, please go to the answer, which is point 10, if you have more energy, you can read the whole article!
Miriam
Saturday, October 10, 2009
Is there hope in sight for ME?
Hello
Yesterday in the Independent, we are given hope, has science found the answer the cause of ME? Please click here to find out more, let's hope so.
Won't it be nice, to be free, from our living death existence, once and for all.
Miriam
Yesterday in the Independent, we are given hope, has science found the answer the cause of ME? Please click here to find out more, let's hope so.
Won't it be nice, to be free, from our living death existence, once and for all.
Miriam
Saturday, July 4, 2009
Raising money for Action 4 ME, and Is assisted suicide right?
Hello
First of all, I got this clip of Phillip Schofield's twitter page! but I think it is rather fun, so am including here, it has nothing to do with ME, but is worth seeing, don't forget to sing along!
As you may remember, Karen on of our members at our local ME group, ran in the Action for ME, that helps people who have ME, she now has an ebay page, which you can access by clicking here, feel free to bid on these items, and so help raise money for ME, thanks.
-----------------------------------------------------------------
People with M.E. appear significantly more likely to be acutely sensitive to artificial perfumes than the general population.
Vivien Pomfrey says my own sensitivity and my consequent research have led me to create a petition to Downing Street against these untested, unnecessary chemicals that make the lives of many of us much worse than they need to be.
If you want to view the petition, please click here.
--------------------------------------------------------------
If you are into Facebook, and would like to receive updates on what Action for me is up to you, can join them at Facebook by clicking here.
Finally, on 7 July, the UK government is discussing passing a bill, to allow assisted suicides. Now with the latest on Kathleen Gilderdale, who helped her daughter who had ME die, has just arrived, feel free to read the article and think, should it be legal to help someone kill themselves or not?
Obviously it is not black and white, and it will have to have several safety clauses! if it goes through.
Miriam
First of all, I got this clip of Phillip Schofield's twitter page! but I think it is rather fun, so am including here, it has nothing to do with ME, but is worth seeing, don't forget to sing along!
As you may remember, Karen on of our members at our local ME group, ran in the Action for ME, that helps people who have ME, she now has an ebay page, which you can access by clicking here, feel free to bid on these items, and so help raise money for ME, thanks.
-----------------------------------------------------------------
People with M.E. appear significantly more likely to be acutely sensitive to artificial perfumes than the general population.
Vivien Pomfrey says my own sensitivity and my consequent research have led me to create a petition to Downing Street against these untested, unnecessary chemicals that make the lives of many of us much worse than they need to be.
If you want to view the petition, please click here.
--------------------------------------------------------------
If you are into Facebook, and would like to receive updates on what Action for me is up to you, can join them at Facebook by clicking here.
Finally, on 7 July, the UK government is discussing passing a bill, to allow assisted suicides. Now with the latest on Kathleen Gilderdale, who helped her daughter who had ME die, has just arrived, feel free to read the article and think, should it be legal to help someone kill themselves or not?
Obviously it is not black and white, and it will have to have several safety clauses! if it goes through.
Miriam
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